Who cares? Managing obligation and responsibility across the changing landscapes of informal dementia care.

Egdell, Valerie (2012) Who cares? Managing obligation and responsibility across the changing landscapes of informal dementia care. Ageing & Society. pp. 1-20. ISSN 0144-686X (In Press)

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This paper explores the different ways in which informal carers for people with dementia negotiate their care-giving role across the changing organisational and spatial landscape of care. In-depth qualitative data are used to argue that the decisions of carers are socially situated and the result of negotiations involving individuals, families and wider cultural expectations. These decisions affect where care occurs. In addressing these issues this paper draws attention to the lack of choice some carers may have in taking on the care-giving role; how and why carers draw upon support; and the different expectations of the care-giver's capabilities across the different sites of care, specifically at home and in nursing homes. It concludes that research and policy attention should focus on how the expectations about the role and abilities of carers are affected by where, and how, care is delivered. In doing so this paper contributes to the emerging health geography literature on care-giving as well as developing the spatial perspective in the established gerontological literature.

Item Type: Article
Print ISSN: 0144-686X
Electronic ISSN: 1469-1779
Additional Information: FirstView Article Copyright © Cambridge University Press 2012
Uncontrolled Keywords: informal care; dementia; landscapes of care; obligation; responsibility
University Divisions/Research Centres: Edinburgh Napier University, Employment Research Institute
Dewey Decimal Subjects: 300 Social sciences > 360 Social problems & social services > 362 Social welfare problems & services
Library of Congress Subjects: H Social Sciences > HN Social history and conditions. Social problems. Social reform
Item ID: 5420
Depositing User: Dr Valerie Egdell
Date Deposited: 13 Jun 2012 14:01
Last Modified: 31 May 2013 09:02

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