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Stigma and the delegitimation experience: An interpretative phenomenological analysis of people living with chronic fatigue syndrome.

Dickson, Adele, Knussen, Christina and Flowers, Paul (2007) Stigma and the delegitimation experience: An interpretative phenomenological analysis of people living with chronic fatigue syndrome. Psychology & Health, 22 (7). pp. 1-17. ISSN 1476 8321

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Abstract/Description

Individual in-depth interviews with 14 people with chronic fatigue syndrome (CFS) were conducted, focusing on the experience of living with CFS. The interviews were transcribed verbatim and were analysed for recurrent themes using interpretative phenomenological analysis (IPA). Here we present two inter-related themes: "Negotiating a diagnosis" and "Negotiating CFS with loved ones". Participants reported delay, negotiation and debate over diagnosis: further, they perceived their GPs to be sceptical, disrespectful and to be lacking in knowledge and interpersonal skills. However, participants found delegitimising encounters with their partners more difficult to deal with. Participants viewed such delegitimation as a form of personal rejection; they were hurt by their loved ones' reactions and subsequently pondered the price of love, respect and friendship. The findings are discussed in relation to extant literature, and recommendations for future research are suggested.

Item Type: Article
Print ISSN: 1476 8321
Uncontrolled Keywords: Chronic fatigue syndrome; delegitimation; Stigma; Interpretive phenomenological analysis; IPA;
University Divisions/Research Centres: Faculty of Health, Life & Social Sciences > School of Health and Social Sciences
Dewey Decimal Subjects: 600 Technology > 610 Medicine & health > 610 Medicine & health
Library of Congress Subjects: R Medicine > RC Internal medicine > RC0321 Neuroscience. Biological psychiatry. Neuropsychiatry
Item ID: 2246
Depositing User: RAE Import
Date Deposited: 04 Apr 2008 11:33
Last Modified: 18 Feb 2013 16:09
URI: http://researchrepository.napier.ac.uk/id/eprint/2246

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